Posts Tagged ‘brain injury advocate organisations’


English: The most common sites of intracranial...

English: The most common sites of intracranial saccular aneurysms. (Photo credit: Wikipedia)

 Other sites by this author:
Save Canada’s Last Wild Mustangs
My American Neighbours
 
 
willinDampCouver

Will

 

My name is Will. Fifty-five-year-old retired  journalist: [travel writing, newspaper reportage {politics my specialty}; documentary screenwriting, webmaster].

There is a little quip used in the Survivors of Brain Injury community. It goes like this:Do you know what my worst handicap is? It’s that nobody can SEE my handicap!

Magnified area: brain aneurysm

I   NEARLY DIED: In 1991 I survived a brain aneurysm (subarachnoid cerebral haemorrhage – right temporal lobe) Hideous pain. Life-wrecker……Like an “Atom Bomb in The Brain.” ← ...good book by a fellow survivor

…Here are the stats on surviving a brain aneurysm: 75% of brain aneurysm victims die before ever making it to a hospital. Of the 25% of victims who make it to the hospital and get the ‘life-saving’ [Ya! Right! …more on that later!] surgery, 1/4 of them will die on the operating table. Of the final survivors : 30% of them will become successful suicides within ten years post-surgery. Almost all survivors will live out their lives alone.[ We develop problems conducting normal social intercourse, so our friends and families desert us], in poverty [ Most of us can never again hold down jobs] and chronically depressed/anxious/suicidal [ just because you feel suicidal doesn’t mean you will actually follow through on those feelings. You just wish you were dead most everyday. You somehow hang in there]……… “Some Fun ! Huh, Bambi ? [ see: The Westerner newspaper, Penticton, B.C./weeklong series on “Survivors of Brain Aneurysms”: Feb. 1998]

ruptured cerebral hemhorrhage

Human brain tissue never heals

Brain surgeons have a “ Hero ” complex.    ✄   ✄ Cutting into a person’s brain and snipping, clipping & coiling an aneurysm usually SAVES a Life, I grant them that. But at what cost to the subsequent relative Quality of Life of the patient?? My surgery was a “clipping” procedure.

Live video of Brain Aneurysm surgery {NOT for the squeamish!}:


In recent years a new less invasive surgery for fixing an aneurysm has emerged, called “coiling.” See the differences between the two surgical procedures: [click here]

Upon my release from hospital after having had my aneurysm clipped, the surgeon sent me away with a big congratulatory slap on the back and said: There you are, Will. Just as Good As New!”

!!!!! NOT !!!!!!

In my case, frankly, I wish the damn doctors had let me die. I Lost My F—-n’ Life on that operating table : because of my brain injury, I suffer numerous sonofabitching disorders

[These are The Things They DON’T TELL YOU ABOUT at the hospital ] :

DEFICITS & DISABILITIES :
(1) organic personality change
(2) chronic depression – unresponsive to anti-depressants
(3) {in my case} aggravation of a pre-existing condition: High-Functioning Adult Autism { ‘The Reporters’ Disorder – many top news reporters have High Functioning Adult Autism (HFA). →Click: to see Wikipedia reference to news reporters with High Functioning Autism (HFA) It’s an advantage because we don’t recognize personal boundaries in interviewing news-makers.  My psychiatrist first pointed this little anomaly out to me. I guess he was right! What a great brotherhood to belong to!
(4) Anxiety disorder. Well-controlled with medications [thankbloodychrist!]
(5) mood discontrol
(6) constant suicidal mentation [ Made one serious attempt so far: ‘Won’t Get Fooled Again‘ though! Very bad news!]

(7) left-side body weakness (Our nervous systems are cross wired. So, injury in my right temporal lobe = damage to my left-side body. Because my left-side limbs are minimally responsive, I suffer backaches all the time. Walking is painful for me, because my left foot does not “bounce” properly and I compensate by allowing my left leg to limp a little, which in turn twists my back muscles out of shape.)

The big medical “heroes” – the wielders of saws and knives and clips and crackers –  just send you away to stumble and fall and crash your life after brain surgery. They know NOTHING! Sometimes, a lucky survivor will come into contact with an advocacy organization that specializes in assistance for survivors of brain injury. I got lucky. After my one-and-only suicide attempt, an angel of a mental health nurse referred me to the British Columbia Brain Injury Association {BCBIA}: bcbraininjuryassociation.

Here is the mission statement of the BCBIA :

To provide a voice to promote a better quality of life for those living with acquired brain injury through education, information, prevention, support and advocacy.”

Every brain surgery survivor should contact their local social services office to find out how to contact their own local Brain Injury Association, and DO IT NOW! An advocacy organization will typically provide group therapy for survivors who are experiencing mental distress; they will often bring in professional guest speakers to help educate survivors about “the things they DON’T TELL YOU” at the hospital. As well, you will meet other survivors who are struggling with the very problems you, yourself are so troubled by. You’ll make a few valuable friends to lean on! And – very important – since you likely will have difficulty holding down a job after your injury,  an advocacy group will always guide you through the process of applying for and getting income support and health support in the U.S.A, , and in Canada. They will make the paperwork easy. It just might Save Your Life!

**POLL ANSWER** : The most conservative, measured answer is 1%. So if you are at a party of 100 people, one of the people there is guaranteed to have an aneurysm already developed in their brain. The aneurysm may burst and cause a life- threatening event at any time, or it may remain benign for the entire life of the individual. The top aggravating factor that sets off a hemorrhage is sudden exertion. Contrary to common belief, a hemorrhage is not preceded by a headache.   See video by Dr. David Newell of the Swedish Neuroscience Institute : http://www.encyclopedia.com/video/s32_RM2947k-what-is-cerebral-aneurysm.aspx
However, estimates vary. According to the National Institutes of Health as many as 5 per cent of Americans might have an undetected brain aneurysm. Read more: http://www.livestrong.com/article/161592-brain-aneurysm-surgery-recovery/#ixzz1A5VcnssM. The 1 % figure is a sure thing.

Other sites by this author:
Save Canada’s Last Wild Mustangs

My American Neighbours


**POLL ANSWER** : The most conservative, measured answer is 1%. So if you are at a party of 100 people, one of the people there is guaranteed to have an aneurysm already developed in their brain. The aneurysm may burst and cause a life- threatening event at any time, or it may remain benign for the entire life of the individual. The top aggravating factor that sets off a hemorrhage is sudden exertion. Contrary to common belief, a hemorrhage is not preceded by a headache.   See video by Dr. David Newell of the Swedish Neuroscience Institute : http://www.encyclopedia.com/video/s32_RM2947k-what-is-cerebral-aneurysm.aspx

However, estimates vary. According to the National Institutes of Health as many as 5 per cent of Americans might have an undetected brain aneurysm. Read more: http://www.livestrong.com/article/161592-brain-aneurysm-surgery-recovery/#ixzz1A5VcnssM. The 1 % figure is a sure thing.